TY  - JOUR
T1  - Navigating Duty and Desire: An Interpretative Phenomenological Analysis of Motivations and Their Impact on End-of-Life Care Among Asian Family Caregivers
A1  - SangNam Ahn
A1  - S. Kankanhalli
A1  - Alvin Chuen Wei Seah
A1  - Chinh Thi Kieu Pham
JF  - Journal of Integrative Nursing and Palliative Care
JO  - J Integr Nurs Palliat Care
SN  - 3006-5550
Y1  - 2022
VL  - 3
IS  - 1
DO  - 10.51847/louSiX8FuV
SP  - 74
EP  - 82
N2  - Research on family caregiving often emphasizes external factors—such as socioeconomic conditions, resource access, and social support—as primary influences on caregiver outcomes. Less attention has been given to caregivers’ internal motivations and how their own interpretation of these motivations can shape their wellbeing. This study examines the driving forces behind Asian family caregivers’ engagement in end-of-life care and explores how these motivations can simultaneously enhance or undermine their wellbeing. Using an interpretative phenomenological analysis (IPA) approach, we investigated the lived experiences of 20 primary family caregivers in Singapore providing care for a terminally ill relative. Data were collected via dyadic interviews as part of a broader Randomized Controlled Trial evaluating the Family Dignity Intervention (FDI) for palliative care. Participants were adults (aged 21+) responsible for older patients with a life expectancy of less than 12 months. Interviews took place in participants’ homes, focusing on caregivers’ motivations and personal reflections on their role. Six themes emerged illustrating how caregiving motivations influenced wellbeing: (1) Commitment to Duty—the desire to fulfill responsibilities and avoid future regret, (2) Easing Suffering—a drive to relieve the relative’s pain, (3) Maintaining Connection—valuing shared time and presence, (4) Expressing Gratitude—showing appreciation through caregiving, (5) Adapting to Change—responding flexibly to the illness trajectory, and (6) Facing Mortality—acknowledging and managing the loved one’s prognosis. An overarching theme, Self-Determination as Wellbeing Driver, highlighted the role of personal agency in shaping how motivations were interpreted and their effects on caregiver wellbeing. Caregivers’ sense of autonomy and purpose is central to transforming caregiving motivations into positive experiences, thereby supporting wellbeing during end-of-life care. These insights underscore the importance of considering internal motivational processes when designing interventions and providing support for family caregivers in palliative care contexts.
UR  - https://journalinpc.com/article/navigating-duty-and-desire-an-interpretative-phenomenological-analysis-of-motivations-and-their-imp-yrpi6zgyvqsogf5
ER  -